Getting Amy to eat

Amy is sometimes hard to feed, she has always had trouble, its not her swallow its her chewing,Amy still has her g-tube in but we only use it for her seizure med's and sometimes liquid's.We now have a great chair that she sits in for meals, similar to the one she uses at school its great. This is Amy one morning before school reading her book waiting for her breakfast.Amy has come a long way in the feeding department, our next goal is to get her to feed herself for every meal.

H.U.G.S

Today is March 1st and we are going to have a HUGS meeting, that's (Hydrocephalus United Group Support) this support group was started four years ago by Margaret Woods and I, Margaret has a beautiful daughter named Abby who also has hydrocephalus and doing well, we would like to reach out to the hydrocephalus public and give all the support we can, we may not have all the answers but we sure can listen. Ill post pictures of the meeting in a later post.

today is February 28th and I've just finished the video for our New Mexico 2008 Walk, to improve the lives of people affected by hydrocephalus I hope you enjoy this as much as I enjoyed making it. This year will be our 4th year, we would like it to be even bigger and better then the last.

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Amy's brothers and sister

today is February the 26Th, 2009 and I though I would share with you my three other amazing children, Charles my oldest along with William my middle child love there motocross, they have been riding since they could walk it used to scare me,but now after going through all of what we have gone through with Amy, only God is in control. Selina however is my shy one she can also ride a motorcycle but chooses to do things with Amy and I. Amy loves her brothers and sister so much , I can only say we are all better people for having Amy in our life's I know some days are so very hard for us when we cant go out to eat or go to a movie together , but we know our life is different know and we do the best we can, as long as we do it together! so here is my family.

As I grow and learn

today is Tuesday and I've just started blogging so I know that I've skipped so much, but as i get time I will write in more details. Amy is now five years old she is doing extremely well considering what she has endured through the years past with so many different surgeries, Amy has had two eye surgeries six shunt revisions, that means twelve brain surgeries, that is externalizing and internalizing and a hernia surgeries. I think that's allot for a little girl ,that's why she is our hero. Amy attends the school for the visually impaired she loves school looks forward to it everyday. Amy also has a hard time keeping her balance and she shakes her head back and forth, the Dr's say its a visual stimulation for visually impaired people,its hard to understand, so we just go with it, we try to live day to day and enjoy each moment with our children.