The Day we found out

My husband and I were very excited and very surprised that we were going to have our fourth child, the baby would be due on October 31st. On a routine ultrasound (at my 25th week) my family and I were all in the room, my then ten, eight, and four year old. We were all very excited to know what we were having, the room became quiet, as the tech rolled the wand over my belly I asked her what was wrong? she looked at us with fright, and said to my husband and I and are three small children "the baby does not have a brain" I was shocked, then she said the Dr. would explain everything to me. This was all said in front of my small children, it will always be in there minds as it is in mine forever. well to make a long story short, we needed another opinion we saw another Dr. the next day and that Dr. said she had holopronensephaly and would not make it to birth the risk would be to great for me and I could possibly die from over extension of my uterus, they would then try to encourage me to terminate the pregnancy and "you have one week to decide" because after 26 weeks its a baby, and how I was so angry, I needed still another opinion,and I thank God I did because Dr. Herly whom I saw last was very upset they told me all of what they did, because she did have a brain, she had hydrocephalus and this child a girl that we named Amy deserved a chance.Amy was born 9-18-03 via c-section. Shunted at birth,the shunt failed at eight month old, she had a revision went home the next day, came back because she was very ill. Well she had contracted a staph infection, Amy was in the hospital for the next 4 month she received shunt after shunt after shunt.Amy was now one year old in the hospital it was very sad for us all.The last shunt Amy revived in this hospital in N.M., during surgery they perforated her bowel,she was so septic, we were loosing her. The Dr.just said I don't know what else to do? I said needed to get her out NOW! we were flown to Salt Lake City where Dr.John Kestle would save my baby's life, Amy is doing wonderful she has cortical visual impairment a G-Tube and some learning disabilities. We take one day at a time, love all the time, play most of the time.Amy is our HERO. I have now started a walk-a-thon her in NEW MEXICO because I want to raise awareness in our state and support to any other parents dealing with Hydrocephalus.